Resources

There are resources available to you as a patient that will help you with your diagnosis. 

Patient Toolkit

Being diagnosed with a rare disease can be stressful, daunting and confusing. Where do you start to begin not only to understand this disease, but how to take care of yourself. No doubt there are so many questions swirling in your head - and you just don't know where to start. So many Acromegalics find that they have maybe become reclusive or depressed, which makes it even harder to ask for help,or reach out for support. 

Because of this, the Acromegaly Community is finding ways to help our newly diagnosed #AcroFamily. The toolkit continues to grow each day, but below you can find some downloadable files that could help with questions for your medical team, a packing list for your hotel stay, etc. We hope you find this helpful! If you find that you still have questions, or that you have suggestions for things to include in our Patient Toolkit,  please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.

Patient Assistance Programs

Medications used to treat Acromegaly can be very costly, thus unaffordable for so many patients. Both Laneotride and Octreotide can cost $5,000 per shot, without health insurance. With health insurance, the cost comes down to around $3,000 per shot. To help with these exorbitant costs, the pharmaceutical companies offer patient assitance. Please click on the links below to learn more and apply for assistance.

SOMAVERT Support Programs

2000px Pfizer logo.svgPfizer offers Acromegaly patients financial, emotional and medical support through several available programs. Read more about each program by clicking the program name below, or call 1-800-645-1280 to speak to a representative.
> Pfizer Bridge Program®
pfizer bridge logoHow the Pfizer Bridge Program works



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Your doctor prescribes SOMAVERT and, with your permission, submits your information on an SMN (Statement of Medical Necessity) and the insurance information they have in your file to the Pfizer Bridge Program®*.
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Your Patient Care Consultant (PCC) contacts you to:
  • Get any additional information that is needed
  • Answer your insurance or reimbursement questions
You can help speed the process by having the following current information ready when your PCC calls:
  • A copy of your insurance card, which you can get from your employer or insurance company
  • The policy holder's name, address, and date of birth
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Your PCC verifies your coverage and requests treatment authorization for SOMAVERT, if your insurance company allows. If your insurance company has approved the medicine, your PCC sends the prescription to the pharmacy, and the pharmacy contacts you to set up delivery of SOMAVERT directly to your home.

Your PCC will look for other ways to help get coverage, if your insurance benefits do not cover therapy with SOMAVERT. Your PCC may also help you appeal the decision. This means he or she asks your insurance company to extend your coverage to include SOMAVERT treatment.

Calls about insurance reimbursement are welcome during the hours of 9 AM to 7 PM Eastern Time at 1-800-645-1280.

*Certain programs and services powered by Pfizer RxPathways®.

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Your PCC will look for other ways to help get coverage, if your insurance benefits do not cover therapy with SOMAVERT. Your PCC may also help you appeal the decision. This means he or she asks your insurance company to extend your coverage to include SOMAVERT treatment.


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Calls about insurance reimbursement are welcome during the hours of 9 AM to 7 PM Eastern Time at 1-800-645-1280.
> Financial Support
Financial support is available for eligible SOMAVERT patients
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Patients prescribed SOMAVERT can find help with navigating insurance coverage by calling the Pfizer Bridge Program at 1-800-645-1280. The program can help patients with Copay support for eligible commercially insured patients. Eligible patients pay as little as $5 for their monthly copay.

*Eligibility required. Annual savings up to $20,000. State and Federal Beneficiaries not eligible. Terms and conditions apply.
> Patient Treatment Support
Patient treatment support from the beginning.
pfizer bridge logoStarting a new medicine can mean lots of questions—and, sometimes, hurdles to getting your treatment. That’s why Pfizer created the Pfizer Bridge Program®*. When you enroll in the Pfizer Bridge Program, you are assigned a Patient Care Consultant (PCC).

Somatuline® Depot Copay/Coinsurance Support Program

1024px Ipsen logo.svgOnce the doctor has prescribed Somatuline® Depot (lanreotide) injection, the Patient Access Specialists at IPSEN CARES® can provide applicable patient coverage information, as appropriate, between the patient, doctor's office, insurance company, and specialty pharmacy. By serving as a central point of contact, IPSEN CARES® can help patients get started on treatment and provide support throughout the process.

Patients and Health Care Providers can also call IPSEN CARES® at (866) 435-5677

Learn more about this program

> Patient Authorization (Renewal) Form
Patients are required to sign the Somatuline Depot Patient Authorization form every 12 months to give the Patient Access Specialists at IPSEN CARES® permission to access the patient’s personal health information in order to help with treatment. The form can be signed and submitted online, or by downloadable PDF, which must be printed, filled out, signed, and faxed.

Sandostatin Support Program 

Novartis logo 2018 SQNovartis Oncology is committed to helping you get the medicines you need. Getting access to medications can sometimes be difficult or confusing. Patient Assistance Now Oncology (PANO) offers tools and support designed specifically to help make that process easier.

Support for patients includes:

  • Help you understand your insurance coverage and financial responsibilities through the insurance verification process
  • Help you identify/determine pharmacies covered by your plan Provide insurance and Medicare education
  • Provide information about financial assistance that may be available
  • Patient Support Counselors who are able to provide information in over 160 languages
  • One single point of contact to help guide you through getting access to the medicine prescribed by your doctor

To learn more, call 1-800-282-7630.

> Patient Assistance Now Oncology (PANO) Program
pano 810 920 1224 1600Support designed for patients and caregivers
  • Insurance and Medicare education to help you understand the insurance process Financial assistance for eligible patients*
  • Patient Navigators who provided 1-on-1 support specific to your Novartis medicine(s)*
  • Information about independent organizations that can assist you with your day-to-day needs beyond medical care
  • Patient Support Counselors who are able to provide information in over 160 languages

    *Varies by product 
Our Patient Assistance Now Oncology (PANO) program was created to assist you with accessing your Novartis medicine(s)—from insurance verification to financial assistance—all through a knowledgeable and supportive call center. To learn more about what’s available, call 1-800-282-7630 or visit www.Patient.NovartisOncology.com/.
> Universal Co-Pay Program
Patients may be eligible for immediate co-pay savings on their next prescription of Sandostatin® LAR Depot (octreotide acetate) for injectable suspension.
  • Eligible patients with private insurance may pay $25 per month
  • Novartis will pay the remaining co-pay, up to $15,000 per calendar year, per product*

* Limitations apply. This offer is only available to patients with private insurance. The program is not available for patients who are enrolled in Medicare, Medicaid, or any other federal or state health care program. Novartis reserves the right to rescind, revoke, or amend this program without notice. For full Terms and Conditions, visit www.Copay.NovartisOncology.com or call 1-877-577-7756.

Encourage your patients to find out if they are eligible to enroll in the Universal Co-pay Program by visiting www.Copay.NovartisOncology.com or calling 1-877-577-7756.

> Sandostatin Co-Pay Assistance Application
To apply for co-pay assistance for your Sandostatin injections, complete the application at the link below.   

For direct patient questions call: 1-877-577-7756.

Sandostatin Co-Pay Assistance Application

Discrimination at Work

Do you think that your employer is discriminating against you? There are laws in place for people suffering from medical discrimination.

If you live in the United States and are struggling to handle your medical struggles and your employment circumstances, you have options.

Personal Pain Management

  • Pain is a negative sensation caused by noxious stimuli that is registered by the brain which was relayed from receptors externally or internally from the body.
  • Pain is tolerated differently by every person, but it’s method of travel is consistent for every person.
  • The painful stimulus disturbs the nerve endings sending the pain signal to an afferent nerve. The afferent nerve relays the signal to spinal cord which in turn, sends the message to the brain.
  • The painful stimulus disturbs the nerve endings sending the pain signal to an afferent nerve. The afferent nerve relays the signal to spinal cord which in turn, sends the message to the brain.

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.