OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.
We know how difficult it is to find a doctor to "listen" and take your issues seriously. It's difficult to find doctors familiar with Acromegaly, the signs, the systems, the associated issues.
Since 2009, the Acromegaly Community has been compiling a list of trusted Endocrinologists, Neurosurgeons, Neurologists, Psychiatrists, Otolarynogologists, Pain Specialists, Family Practitioners, etc. from all around the world for you and your family to reach out. Locate your area and click on the dots to see our recommendations.
Acromegalics and their family are meeting around the world to find support, educate themselves and their loved ones, and become part of our special #acrofamily. No matter how small or large, these events touch our lives and help us accept each other, without judgments or prejudices. Please join us!
When: November 1stEach year, we celebrate International Acromegaly Awareness.
We are working on building awareness for Acromegaly in the hope of an earlier diagnosis. The average number of years it takes to receive a diagnosis is 10 years. By the time we get diagnosed, Acromegaly has already caused havoc on our bodies and emotions. By increasing awareness, we hope to decrease the time of diagnosis and improve quality of life.