You are not alone

In 2005, Acromegaly Community was formed as an online support group for patients to discuss their issues with other patients. Today, we have over 3,800 patients and caretakers worldwide advocating for each other and for Acromegaly.

Our Mission

OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.

“You may have to fight a battle more than once to win it.”

— Margaret Thatcher

Our Goals

Raising Awareness: Educating the public, medical community, and patients about acromegaly to improve diagnosis and treatment options.

Support and Resources: Providing resources, support groups, and information for patients and their families to help them navigate the challenges of living with acromegaly.

Advocacy: Advocating for patients' rights, better healthcare access, and more research funding for treatments and understanding of the condition.

Connecting Patients: Creating a community where individuals with acromegaly can share experiences, find support, and learn from each other.

Research Support: Promoting and funding research initiatives that aim to enhance treatment options and improve the quality of life for those with the condition.

Collaboration: To work collaboratively with all shareholders in this space, Patients, Physicians, Pharma, and Government entities.

Our Achievements