Support Groups

For years, so many Acromegaly patients felt alone, struggled with undiagnosed symptoms, confused about what is happening to their bodies, lived with chronic pain. We couldn’t talk to family and friends about everything without being judged, ignored or told we are hypochondriacs. All of these things, and more, have made us feel isolated. We were alone.

By finding and being part of an Acromegaly Support Group, you will find people who have struggled with the same issues and concerns you have. This common ground provides a safe space where you can share experiences, find understanding, and build connections with others facing similar challenges.

Often times, these group hold events, webinars, etc. so that you can build your relationships and network, expanding your Acro Family. The benefits can be endless and bring you out of a dark place if you are stuck in one.

The following list has been composed of known support groups that we trust, and most are private groups so you will not be trolled or judged by others.

Group Location
Pacientes con Acromegalia -Argentina(PAA)Argentina
Acromegalia Suporte BrasilBrasil
Acromegaly CanadaCanada
Acromegaly Women - CanadaCanada
Acromegaly Men - CanadaCanada
Acromegaly Manitoba & SaskatchewanCanada
Acromegaly TorontoCanada - Toronto
Vancouver Acromegaly Support GroupCanada - Vancouver
Agrupación Pacientes Acromegalia-ChileChile
Acromegalia Ecuador Tú Espacio de FéEcuador
Acromégales, pas seulement France
Pacientes con Acromegalia y tumor Hipofisario en GuatemalaGuatemala
Ireland Acromegaly SupportIreland
Acromegalia gruppo ITALIA - Acromegaly Community ItalyItaly
Acromegaly Support and Awareness KenyaKenya
Malaysia Acromegaly SocietyMalaysia
Acromegaly Supporting Group (Myanmar)Myanmar
Acromegaly NZ Members Support & EducationNew Zealand
Acromegaly PhilippinesPhilippines
Acromegaly Taiwan (肢端肥大症)Taiwan
Acromegaly... Support group Doncaster South Yorkshire UKUnited Kingdom
UK Acromegaly SupportUnited Kingdom
Women Only Acromegaly Support - UK and IrelandUK, Ireland
Acromegaly Artisans & Art FansUSA
Acromegaly Loved Ones: Support Group For Family, Loved Ones & CaregiversUSA
Acromegaly OutreachUSA
Acromegaly SupportUSA
Acromegaly - Men Only Discussion GroupUSA
Acromegaly- Women’s Only Discussion GroupUSA
Acromegaly Support - ColoradoUSA - Colorado
MI-AcromegalyUSA - Michigan
Acromegaly Community of TexasUSA - Texas