You are not alone
Our Mission
OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.
Join us for a virtual webinar and learn about PALSONIFYTM
(paltusatine). A once-daily oral tablet
February 10, 2026, 7:30pm ET on Zoom
Hear from Ashleigh, who lives with acromegaly, and Dr. Jerkins, MD. Together, they’ll share personal experiences, helpful education, and insights about PALSONIFYTM — an oral treatment option for adults with acromegaly.
Patient Acromegaly Day
Join us for Patient Acromegaly Day, a free virtual event on Friday, March 13, 2026, hosted by NYU Langone Health and the Acromegaly Community. Designed for patients and caregivers, this program offers clear, compassionate education on living with acromegaly, including treatment options, managing daily symptoms, and mental well-being—plus the chance to hear from experts and connect with others who understand.
Have more proactive conversations with your acromegaly care team
Acromegaly can affect your body in many ways. You may feel tired, sweat a lot, or have changes to your hands and jaw. Acromegaly can also affect your heart, eyes, and even your mental health. These effects can change over time, even if you have had surgery or are taking medicine to control your acromegaly.
New Frontiers with Gina Grad: Acromegaly Community Inc.
Join us for an exclusive look at Acromegaly Community Inc.—a pioneering nonprofit dedicated to supporting individuals living with the rare endocrine disorder Acromegaly. Hosted by the vibrant Gina Grad (broadcaster and author of My Extra Mom), this New Frontiers documentary spotlights personal journeys, expert insights, and breakthrough therapies that can reshape patient care. Acromegaly often results from a benign pituitary tumor, causing excessive growth hormone production and impacting everything from physical features to joint health. In this episode, discover how Acromegaly Community Inc. provides vital resources, educational programs, and a supportive network—ensuring no one faces this condition alone. Brought to you by Planet TV Studios, this special segment will air on Fox Business in the first quarter of 2025.
Speaking with Doctors
Together with Acromegaly provides valuable tools for patients and caregivers to learn how to discuss treatment decisions and lifestyle changes with your doctors. The more questions you ask your doctor, the better off you’ll be at managing your disorder and making progress.
Find Support
Whether you are looking for physicians, prescription details, patient assistance with medication, travel or mental health or seeking support in organizing your appointments, diagnosis details or community support, we can help. Visit our Patient Support page to see how we can help you.