You are not alone
Our Mission
OUR MISSION is to provide an emotional and communal support network for people touched by Acromegaly. We offer a central location for medical information on issues including: surgery, medication, radiation, and post diagnosis support. Most importantly, we work to provide a network of emotional support for our Acromegaly patients, their friends and their family.
Coming to a city near you…
2025 Acromegaly Education Regional Meetings
Join Acromegaly Community as we empower patients through education at our second regional meeting series! 2025 Regional Meetings to be held in Boston, Los Angeles and Detroit for this year’s Regional Meetings!
Stay tuned! Dates to come!
Have more proactive conversations with your acromegaly care team
Acromegaly can affect your body in many ways. You may feel tired, sweat a lot, or have changes to your hands and jaw. Acromegaly can also affect your heart, eyes, and even your mental health. These effects can change over time, even if you have had surgery or are taking medicine to control your acromegaly.
Speaking with Doctors
Together with Acromegaly provides valuable tools for patients and caregivers to learn how to discuss treatment decisions and lifestyle changes with your doctors. The more questions you ask your doctor, the better off you’ll be at managing your disorder and making progress.
Find Support
Whether you are looking for physicians, prescription details, patient assistance with medication, travel or mental health or seeking support in organizing your appointments, diagnosis details or community support, we can help. Visit our Patient Support page to see how we can help you.