You are not alone. Find support below.

We know how difficult it is to find a doctor to "listen" and take your issues seriously. It's difficult to find doctors familiar with Acromegaly, the signs, the systems, the associated issues.

Since 2009, the Acromegaly Community has been compiling a list of trusted Endocrinologists, Neurosurgeons,  Neurologists, Psychiatrists, Otolarynogologists, Pain Specialists, Family Practitioners, etc. from all around the world for you and your family to reach out. Locate your area and click on the dots to see our recommendations. 

If you do not find your doctor listed below, and are interested in adding them to the list, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

Endocrine Support Organizations

Groups we are friendly with... The most famous patient with Acromegaly.  A great person surrounded by a wonderful and loving family bringing state-of-the-art and up-to-date information pertaining to health related matters of importance to those with pituitary tumors and other related disease processes.
 Brain Tumor Center at St. John's Health Center, John Wayne Cancer Institute Pituitary Tumors Watch Videos- Patient Support Group Meetings.  Click here for nine excellent videos dealing with hormonal health! Blogging from people living with Acromegaly Blogging and support for people dealing with pituitary tumors Dedicated to those touched by hormonal disorders.  Provides information and support Ipsen (Somatuline) Ipsen (Somatuline) Pfizer (Somavert)
mAss Kickers: Primarily a cancer-based group, but a great group with a solid message.
MD Junction: Online support groups for your health challenges
Daily Strength: Online support groups and forums Website dedicated to medical issues that may be difficult to diagnose

Endocrine Organizations

American Academy of Clinical Endocrinology:
This is a general endocrinology group with about 3,000 members
Pituitary Society:
This group focuses on improving the health of patients with pituitary issues including educational programs for patients, family, med students, scientists, and doctors. They develop programs to study the biology of pituitary issues.
Endocrine Society:
Founded in 1916 and is the oldest and largest endocrine group in the country. These people are very active. They are devoted to research on hormones and clinical practice. They are searching for greater understanding of endocrinology among the general public and medical doctors.

Pituitary Disease Education
This group studies general pituitary gland function and diseases including: prolactinoma, Cushings Disease, and acromegaly. They also look at treatment options, hormone deficiency, patient stories, and clinical trials   
This is an outreach program run through Cedars Sinai This is the Hormone Foundation. It focuses on general pituitary tumors and acromegaly in a more general sense as a pituitary disorder
This is a layperson's site for acro on understanding, living with, and treating acro.
NORD (National Organization for Rare Diseases):
Specializes in "orphan" diseases and research.
Hormone Foundation:
14,000 members. Specializes in prevention, treatment, and curing of hormone-related diseases

Acromegaly does not define us. We do not let our diagnosis hold us back from living a full and enriched life. Some have found passion, purpose, and inspiration through their diagnosis. These people bring inspiration, and we call this our "Faces of Hope".

Say hello.